Skip to main content

Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes

Agency: Centers for Disease Control and Prevention - ERA

Assistance Listings
  • 93.315 -- Rare Disorders: Research, Surveillance, Health Promotion, and Education

Archived opportunityLast Updated: May 13, 2026

View version history on Grants.gov

FOA PurposeThe purpose of this FOA is to contribute to the understanding of the natural history of fragile Xsyndrome (FXS) across the lifespan, explore effective strategies to increase participation in thelongitudinal database for minority, underserved, and adults living with FXS, and test approaches tomeasure cognitive and behavioral function in the FXS population.

Eligibility

Eligible applicants

Miscellaneous

  • Other

Additional information

Eligibility Information1. Eligible ApplicantsEligibility Category: State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribalgovernments)Nonprofits having a 501(c)(3) status with the IRS, other than institutions ofhigher educationNonprofits without 501(c)(3) status with the IRS, other than institutions ofhigher educationPrivate institutions of higher educationFor profit organizations other than small businessesSmall businessesThe following types of Higher Education Institutions are always encouraged to apply for CDC support asPublic or Private Institutions of Higher Education:Hispanic-serving InstitutionsHistorically Black Colleges and Universities (HBCUs)Tribally Controlled Colleges and Universities (TCCUs)Alaska Native and Native Hawaiian Serving InstitutionsNonprofits Other Than Institutions of Higher Education:Nonprofits (Other than Institutions of Higher Education)Governments:Eligible Agencies of the Federal GovernmentU.S. Territory or PossessionOther:Native American tribal organizations (other than Federally recognized tribalgovernments)Faith-based or Community-based Organizations12 of 41Regional OrganizationsBona Fide Agents: a Bona Fide Agent is an agency/organization identified bythe state as eligible to submit an application under the state eligibility in lieu ofa state application. If applying as a bona fide agent of a state or localgovernment, a legal, binding agreement from the state or local government asdocumentation of the status is required. Attach with "Other AttachmentForms" when submitting via www.grants.gov.2. Foreign OrganizationsForeign Organizations are not eligible to apply.Foreign components of U.S. Organizations are not eligible to apply.For this announcement, applicants may not include collaborators or consultants from foreign institutions. Allapplicable federal laws and policies apply.3. Special Eligibility RequirementsIf your application is incomplete or non-responsive to the special eligibility requirements listed inthis section, it will not enter into the review process.Component CApplicants must demonstrate that their clinic capacity is greater than or equal to 30 individualfragile X syndrome patients per year.

Grantor contact information

Description

Sharon Cassell E-mail Address scassell@cdc.gov Office Phone (770-488-2703)

Email

Certified Grants Management Officer

scassell@cdc.gov

Documents

File nameDescriptionLast updated
DD15-003_NOFO.pdf
Using Longitudinal Data to Characterize the Natural History of Fragile X Syndrome to Improve Services and Outcomes
Feb 10, 2020 12:54 PM UTC

Link to additional information

--

Archived: March 21, 2020

Application process

This site is a work in progress. Go to www.grants.gov to apply, track application status, and subscribe to updates.

Award

$4,250,000

Program Funding

5

Expected awards

$--

Award Minimum

$350,000

Award Maximum

Funding opportunity number:

RFA-DD-15-003

Cost sharing or matching requirement:

No

Funding instrument type:

Cooperative agreement

Opportunity Category:

Discretionary

Opportunity Category Explanation:

--

Category of Funding Activity:

Health

Category Explanation:

--

History

Version:

7

Posted date:

December 19, 2014

Archive date:

March 21, 2020

HHS.gov

An official website of the U.S. Department of Health and Human Services

Looking for U.S. government information and services? Visit USA.gov