Epidemiology of Lupus: Longitudinal Studies in Population-Based Cohorts

should include four content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that adults with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.Component B: (A Pediatric Lupus Registry with Longitudinal Follow up):This is a project that will support an existing US-based registry of children age 0-17 years with diagnosed lupus (SLE and skin lupus). The intent of this study is to gather baseline data for children age 0-17 years and follow up data for this cohort for three additional years. The baseline and follow up data should include these 4 content areas:The natural history (e.g., severity, morbidity, mortality, disability, comorbidity, work interference, etc.) of cohort members, andTreatment (e.g., medications, therapy, self-management, etc.) of lupus including the treatment of chronic pain and opioid use, andHealth care access and gaps that children with lupus experience, andDisparities (e.g., age, race/ethnicity, sex) and other factors associated with lupus outcomes.