Public Health Surveillance for the Prevention of Complications of Bleeding Disorders

Since the 1990s the congressional budget has included funds for the the Centers for Disease Control and Prevention (CDC) to reduce or prevent the complications of hemophilia and other congenital bleeding disorders. Since 1996 the CDC has funded the federal network of hemophilia treatment centers (HTCs) for the collection of data for the monitoring of health indicators of importance to persons with bleeding disorders. This data is used to measure rates of complications of bleeding disorders and monitor trends over time (including inhibitors and other issues of blood and treatment product safety);...

Applicants must provide documentation that HTCs have agreed to collaborate with the awardee and CDC to carry out the strategies and activities relevant to the HTCs that are proposed for this project. This documentation may be in the form of letters of support, letters of agreement, memoranda of understanding, memoranda of agreement, or contracts from or with collaborating HTCs (hereafter referred to collectively as “letters of support”). Documentation from the regional core center on behalf of the participating HTCs within its region may be provided in place of individual documentation from each HTC. If letters of support are not provided, the applicant will be considered non-responsive.

Meredith Oakley mco6@cdc.gov