Long-term health outcomes of people living with spina bifida
Agency: Centers for Disease Control - NCBDDD
Assistance Listings: 93.073 -- Birth Defects and Developmental Disabilities - Prevention and Surveillance
Last Updated: August 26, 2026
Description
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building...
on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Eligibility
Eligible applicants
Government
- State governments
- City or township governments
- County governments
- Special district governments
- Federally recognized Native American tribal governments
Education
- Private institutions of higher education
- Independent school districts
- Public and state institutions of higher education
Business
- Small businesses
- For-profit organizations other than small businesses
Nonprofit
- Nonprofits non-higher education with 501(c)(3)
- Nonprofits non-higher education without 501(c)(3)
Additional information
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Grantor contact information
Description
Stephanie Griswold
eut6@cdc.gov
eut6@cdc.gov
Documents
| File name | Description | Last updated |
|---|---|---|
| cdc-rfa-dd-26-0222_forPublication.pdf | cdc-rfa-dd-26-0222_forPublication.pdf | Aug 26, 2026 01:57 PM UTC |
Link to additional information
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Closing: October 26, 2026
Electronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.
Award
$3,000,000
Program Funding
19
Expected awards
$100,000
Award Minimum
$300,000
Award Maximum
Funding opportunity number:
CDC-RFA-DD-26-0222
Cost sharing or matching requirement:
No
Funding instrument type:
Cooperative agreement
Opportunity Category:
Discretionary
Opportunity Category Explanation:
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Category of Funding Activity:
Health
Category Explanation:
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History
Version:
1
Posted date:
August 26, 2026
Archive date:
November 25, 2026
